I was invited to speak about BFS on a Huffington Post Live show – the link is below (about 30 minutes long).
Disclosure: Dr. Filippakis has nothing to disclose. I hope the neurologist can help to calm me down and give me some reassurance next week.Just one more question.Just before i noticed all these fasciculations etc i purchased an exercise bike. My advice is to stay active and do things that minimize stress and see if that helps your condition.
And that the fasciculations all over my body are benign. Fill in your details below or click an icon to log in: You are commenting using your WordPress.com account.
Remember, CFS / BFS symptoms are most common in the legs and feet. The neurologist confirmed my suspicion. Unfortunately my physician went on vacation. It is difficult to keep quiet.
I am looking for a doctor to collaborate with - to help get this information published. But I wasn't satisfied with that answer, because everything I had read on the internet stated that essential tremors were tremors that occurred with movement. I already have scoliosis with rods placed about 30 yrs ago, so my back is generally a mess to begin with. The Misconceptions of Benign Fasciculation Syndrome (BFS), Benign Fasciculation Syndrome-BFS (Part III), Benign Fasciculation Syndrome-BFS (Part IV), The Occupy Wall Street Manifesto for EXCEPTionalism, Benign Fasciculation Syndrome-BFS (Part II).
It sounds like you are coping quite fine. Wish they could find something to help all of us sufferers.... Hi MCourtney, yes, BFS can be progressive according to the data I have taken.
Most still experienced subjective weakness, sensory symptoms, and cramps.
However, they appear to be a cause of anxiety, particularly among those in the medical field. Syndrome? Pins/needles, numbness, twitching, tremors, sometimes pain with cramping etc. In my case, there may have been a multitude of triggers including exercise, family history, childhood illness, prescription drugs, stress, and other factors such as alcohol abuse in the past.
It's hard to describe what it feels like but it feels like nerve pain. She told me that it's hard to keep the tongue from twitching if you have twitches.
I am interested to know if anyone diagnosed with BFS can relate to the specific symptoms that I experience. Your email address, e.g. I had the front left shin turn 'hot' and a rubber band feeling (everybody sais left side .. real weird). I just wanted to update my status as I believe I know what is responsible for my muscle twitching. I had the EMG test done several times and it always turned out normal. [1,2] My story starts as far back as high school. I find that if I go off clonezapam for any length of time, that they really start to bother me. I should probably go either way, just to find that peace that i so much need.What do you think Mr. Bohan?
At 37 years old I can't carry bags of groceries from the car without having forearm cramps and pain for two days following. MRI of the neck showed a bulged disk on C5-C6 and another partially bulged on C3-C4 ( those MRI findings were a surprise for me since I don't have pain in the neck).
I went to the cardiologist to rule extrasystoles and other problems. I have also had just about every blood test under the sun, and the upshot seems to be that I have not got a serious disorder such as motor neuron disease or MS, for which I am eternally grateful. No comments have been published for this article.
They come back when I travel, have a cold, or generally overexert myself in any way. Very comforting.
If you have ALS it will progress very fast. I was infected with HERPES SIMPLEX VIRUS in 2010, i went to many hospitals for cure but there was no solution, so I was thinking how can I get a solution out so that my body can be okay.
I have heard though that in some cases Botox can be injected into the area with the problem which is supposed to help. Benign fasciculation syndrome stories. Klonopin helps somewhat with the twitching. I read an interesting article by a doctor (Rocco) who do not know the source, explaining that this is normal, many people are crazy about these symptoms, but made it clear that when a patient has ALS fasciculations usually the doctor notice other symptoms he had never noticed. BFS and CFS average age seems to be younger.
My advice to everyone who may be labelled with BFS is to be reassured that yes it is benign in the sense it is not a universally fatal disease or progressive disease like most neurological disorders. Fatigue has sometimes controlled my desire to do anything and I end up sleeping or laying around. I always seem to be sweating profusely and have very oily skin.
But at the time of onset, my emotional stress was off the chart, the worst I’ve probably ever experienced. After another wide range of tests I was told I have fibromyalgia.
Background: Benign fasciculations are common in the general population, occurring in about 70% of healthy individuals.
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